No longer ambulatory
it’s happened, I’ve lost my legs.
I’ve had one or two warning signs leading up, but only lasted a day or most of a day.
Sunday the 8th of October was d day. I remember doing my usual thing, waking at 1 am ( used to average 2am) for the toilet and my normal time of stiffness. I usually stay awake for two hours roughly. just gently rocking or pacing like a robot!!!! TRUE.
This particular Sunday morning as I gently went to stand, there was no stiffness, rigidity or spasticity in my legs. There was nothing. I woke feeling strange as i had a tightness around my neck and throat. Hoping once I got up and moved a bit, it would all regain its normalcy.
Nope 👎
I went to stand but my legs buckled. The spasticity in my throat was fairly mild and I’ve had this many times. Like I said, once I move around it loosens up to a manageable level.
From the ground, I tried pulling myself up, obviously using all my muscles and power in the upper extremities of my body. My arms are built like a brick shit house I tell ya.
Managing to drag myself to the big Queenslander window ledge, I pulled myself up finally. The next part was the biggest challenge I’ve had by far. My neck, throat and shoulders went into major major spasticity to the point I couldn’t get oxygen in or out.
I’ve had one or two warning signs leading up, but only lasted a day or most of a day.
Sunday the 8th of October was d day. I remember doing my usual thing, waking at 1 am ( used to average 2am) for the toilet and my normal time of stiffness. I usually stay awake for two hours roughly. just gently rocking or pacing like a robot!!!! TRUE.
This particular Sunday morning as I gently went to stand, there was no stiffness, rigidity or spasticity in my legs. There was nothing. I woke feeling strange as i had a tightness around my neck and throat. Hoping once I got up and moved a bit, it would all regain its normalcy.
Nope 👎
I went to stand but my legs buckled. The spasticity in my throat was fairly mild and I’ve had this many times. Like I said, once I move around it loosens up to a manageable level.
From the ground, I tried pulling myself up, obviously using all my muscles and power in the upper extremities of my body. My arms are built like a brick shit house I tell ya.
Managing to drag myself to the big Queenslander window ledge, I pulled myself up finally. The next part was the biggest challenge I’ve had by far. My neck, throat and shoulders went into major major spasticity to the point I couldn’t get oxygen in or out.
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