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Showing posts from October, 2017

No longer ambulatory

it’s happened, I’ve lost my legs. I’ve had one or two warning signs leading up, but only lasted a day or most of a day. Sunday the 8th of October was d day. I remember doing my usual thing, waking at 1 am ( used to average 2am) for the toilet and my normal time of stiffness. I usually stay awake for two hours roughly.  just gently rocking or pacing like a robot!!!! TRUE. This particular Sunday morning as I gently went to stand, there was no stiffness, rigidity or spasticity in my legs. There was nothing.  I woke feeling strange as i had  a tightness around my neck and throat. Hoping once I got up and moved a bit, it would all regain its normalcy. Nope 👎 I went to stand but my legs buckled. The spasticity in my throat was fairly mild and I’ve had this many times. Like I said, once I move around it loosens up to a manageable level. From the ground, I tried pulling myself up, obviously using all my muscles and power in the upper extremities of my body.  My arms are built like a br

Biting off more than you can chew.

I’ve got this bitter taste at the moment. Not literally though.  People have again left a bad taste in my mouth. I really don’t want to feel like this. I love it when I meet beautiful people that you can sit down with and have a happy life experience discussion. The end