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Showing posts from October, 2017

No longer ambulatory

it’s happened, I’ve lost my legs. I’ve had one or two warning signs leading up, but only lasted a day or most of a day. Sunday the 8th of October was d day. I remember doing my usual thing, waking at 1 am ( used to average 2am) for the toilet and my normal time of stiffness. I usually stay awake for two hours roughly.  just gently rocking or pacing like a robot!!!! TRUE. This particular Sunday morning as I gently went to stand, there was no stiffness, rigidity or spasticity in my legs. There was nothing.  I woke feeling strange as i had  a tightness around my neck and throat. Hoping once I got up and moved a bit, it would all regain its normalcy. Nope 👎 I went to stand but my legs buckled. The spasticity in my throat was fairly mild and I’ve had this many times. Like I said, once I move around it loosens up to a manageable level. From the ground, I tried pulling myself up, obviously using all my muscles and power in the upper extremities of my body.  My arms ...

Biting off more than you can chew.

I’ve got this bitter taste at the moment. Not literally though.  People have again left a bad taste in my mouth. I really don’t want to feel like this. I love it when I meet beautiful people that you can sit down with and have a happy life experience discussion. The end